Privacy data management and awareness for public administrations: A case study from the healthcare domain

Abstract

Development of Information Systems that ensure privacy is a challenging task that spans various fields such as technology, law and policy. Reports of recent privacy infringements indicate that we are far from not only achieving privacy but also from applying Privacy by Design principles. This is due to lack of holistic methods and tools which should enable to understand privacy issues, incorporate appropriate privacy controls during design-time and create and enforce a privacy policy during run-time. To address these issues, we present VisiOn Privacy Platform which provides holistic privacy management throughout the whole information system lifecycle. It contains a privacy aware process that is supported by a software platform and enables Data Controllers to ensure privacy and Data Subjects to gain control of their data, by participating in the privacy policy formulation. A case study from the healthcare domain is used to demonstrate the platform’s benefits.